What every patient with myotonic congenita dreads (whether you have Becker or Thomsen myotonics) are those bored stairs. When you board the bus or when you have to go to another floor at school/work. Stairs are an eyesore. In many cases, going down the stairs is easier than going up. Mainly a matter of keeping your balance so you don't fall. However, actually walking with this muscle disease can be quite a challenge. Depending on the severity of your condition, no matter how well you prepare yourself in advance by warming up your muscles, muscle stiffness usually occurs immediately on the second or third step. Your legs lock up and you can't go anywhere. Only when you are halfway up the stairs will your leg muscles be able to continue without cramping or pain and only then will you be able to move along with the crowd somewhat effortlessly. For this reason, patients often come up with an excuse or excuse during the first few steps, so that the patient's immobility is less noticeable. They pretend that they have lost something and look for it in a bag. Pretend they are having an in-depth conversation with their cell phone to their ear, when in fact there is no one on the other end of the line. This shame for the disease myotonic congenita is often underexposed and can cause a lot of psychological stress for the patient. If you experience this, it is certainly advisable to discuss this with your doctor to get the right help. Fortunately, in addition to elevators and escalators, there are also solutions for your own home. You can use the two step system in your own home. This halves the steps and makes climbing stairs less strenuous, which makes it easier to climb.
